授权有能力的儿童协助机构审查委员会
Samuel Asiedu Owusu1, Claudia Passos-Ferreira2
1Directorate of Research, Innovation and Consultancy, University of Cape Coast, Cape Coast, Ghana sowusu@ucc.edu.gh.
Journal of medical ethics
|July 16, 2025
概括
孩子 孩子 孩子 孩子
科学领域:
- 生物伦理学生物伦理学
- 儿科研究 儿科研究
- 儿童发展 儿童发展
背景情况:
- 成年人往往不能代表儿童在研究伦理方面的利益.
- 目前的机构审查委员会 (IRB) 排除了儿童的观点.
- 儿科研究中的伦理复杂性需要儿童的参与.
研究的目的:
- 倡导让有能力的儿童参与IRB程序.
- 探索儿童参与研究审查的好处.
- 提出一个儿童参与IRB的模型.
主要方法:
- 审查道德发展研究,以评估儿童的能力.
- 基于道德原则的儿童包容的论证.
- 在IRB中制定儿童参与模式.
- 在全球儿科研究中实施的讨论 (加纳).
主要成果:
- 有能力的孩子可以为IRB提供宝贵的见解.
- 让儿童参与增强了代表性和道德敏感性.
- 儿童参与可以提高儿科研究的质量和福祉.
结论:
- 允许有能力的儿童协助IRB从伦理上是合理的.
- 可以成功地实施儿童参与IRB的模式.
- 解决利益相关者的担忧对于成功的整合至关重要.
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