定义以家庭为中心的癌症护理:一组概念映射研究
Karla T Washington1, Abigail J Rolbiecki2, Todd D Becker3
1Division of Palliative Medicine, Department of Medicine, Washington University School of Medicine in St. Louis, St. Louis, Missouri, USA.
Psycho-oncology
|July 17, 2025
概括
家庭成员强调了改善以家庭为中心的癌症护理的关键领域,强调需要更好的设施支持,财政援助和教育. 解决这些问题可以提高对患者及其家人的护理.
科学领域:
- 在瘤学瘤学.
- 患者和家庭的支持.
- 医疗保健服务研究 医疗服务研究
背景情况:
- 以家庭为中心的癌症护理至关重要,但缺乏明确,可行的定义,阻碍了一致的临床应用.
- 以前的定义往往忽视了不同的家庭观点,可能会加剧健康差异.
研究的目的:
- 通过吸引癌症患者的各种家庭成员来定义以家庭为中心的癌症护理的基本组成部分.
- 确定癌症中心可以实施的可行的策略,以更好地支持患者的家人.
主要方法:
- 一个连续的混合方法组概念映射研究,涉及121名家庭成员 (配偶,成年子女等). ) 的情况.
- 参与者进行了头脑风暴,对潜在的家庭支持策略进行了评价和排序.
- 数据分析包括多维缩放,集群分析和描述性统计数据.
主要成果:
- 家庭成员确定了五个关键的支持集群:设施特点,财政援助,家庭支持,临床操作和家庭教育.
- 所有识别的响应都被评为重要,78%被认可为其护理经验的真实.
- 参与者主要是配偶/伴侣 (53%) 和成年子女 (22%),平均年龄为55岁.
结论:
- 家庭成员认识到以家庭为中心的癌症护理的价值,但也看到了改善的重大机会.
- 在确定的领域实施改进可以加强对癌症患者及其家属的支持系统.
- 解决这些机会对于改善整体癌症护理结果至关重要.
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