在癌症护理环境中实施性取向和性别认同数据收集
Jaimee L Heffner1, Nicholas Giustini2, Nicolas Anderson1
1Division of Public Health Sciences, Fred Hutchinson Cancer Center, Seattle, WA 98109, United States.
Journal of the National Cancer Institute. Monographs
|July 17, 2025
概括
在癌症护理环境中收集性取向和性别认同数据至关重要. 采用多种方法的方法显著提高了试点诊所的数据完成率,加强了针对性和性别少数群体的研究.
科学领域:
- 在瘤学瘤学.
- 公共卫生 公共卫生
- 医疗信息学 医疗信息学
背景情况:
- 癌症登记册中的有限的性取向和性别认同 (SO/GI) 数据阻碍了对性和性别少数群体 (SGM) 人口的研究.
- 解决数据缺口对于公平的癌症护理和研究至关重要.
研究的目的:
- 实施和评估用于在癌症护理环境中收集SO/GI数据的多方法方法.
- 与对照诊所相比,评估这种方法对数据完成率的影响.
主要方法:
- 采用了多种方法的数据收集策略,包括电话接收和临床物理形式.
- 对SO/GI,出生时分配的性别以及试点和对照诊所之间的所有三个变量进行了数据完成率的比较.
- 收集了临床工作人员关于干预的定性反.
主要成果:
- 试点诊所显示,性别认同 (55.6%至65.1%),出生时分配的性别 (58.4%至63.2%) 和性取向 (45.1%至53.7%) 的完成率在统计学上显著增加.
- 在试点诊所中,所有三个变量的总体完成率从37.8%增加到44.7%.
- 工作人员报告了患者对数据收集过程的不同反应.
结论:
- 多方法方法有效地增强了癌症护理环境中的SO/GI数据收集.
- 改善数据收集对于推进癌症研究和对SGM个体的护理至关重要.
- 建议进一步研究和实施标准化的SO/GI数据收集.
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