映射差异:识别性和性别少数群体患者的癌症护理差距
Nicole L Simone1, Sara Burke1, Khaldoun Hamade2
1Department of Radiation Oncology, Sidney Kimmel Comprehensive Cancer Center at Thomas Jefferson University, Philadelphia, PA 19107, United States.
将性取向和性别认同 (SOGI) 数据与电子健康记录的整合揭示了癌症风险因素和性和性别少数群体 (SGM) 患者的社会脆弱性的差异.
科学领域:
- 在瘤学瘤学.
- 公共卫生 公共卫生
- 医疗信息学 医疗信息学
背景情况:
- 性和性别少数群体 (SGM) 患者经历了癌症护理差异.
- 缺乏性取向和性别认同 (SOGI) 数据收集有助于这些差异.
- 电子健康记录 (EHR) 数据与SOGI的整合可以描述SGM癌症种群.
研究的目的:
- 使用基于EHR的指标和SOGI数据来描述SGM癌症群体.
- 识别SGM个体癌症护理方面的差异.
- 为SGM癌症患者提供有针对性的干预信息.
主要方法:
- 从EHR活跃癌症注册表中识别出癌症群体.
- 链接的SOGI,人口统计,物质使用,分子诊断和健康的社会决定因素 (SDOH) 数据.
- 使用Z测试来比较SGM和非SGM患者之间的风险因素,社会脆弱性和基因组测试.
主要成果:
- 分析了9,544名具有SOGI数据的患者 (565名SGM,8,979名非SGM).
- SGM患者年轻,不太可能结婚,癌症风险因素和社会脆弱性更高.
- SGM患者的门癌和卡波西肉瘤的发病率较高;基因组测试没有差异.
结论:
- 将SOGI数据与临床数据相结合,发现SGM癌症患者的显著差异.
- 在癌症风险因素,SDOH和特定癌症类型中发现了差异.
- 强调需要针对SGM癌症患者进行有针对性的干预和个性化护理,以改善结果.
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