在全球南方对基因组学的公共利益的概念化:一个跨学科的圆桌对话对话
Tayyaba Jiwani1, Adjua Akinwumi2, Jocelyn Cheé-Santiago3
1Department of Sociology, Philosophy, and Anthropology, University of Exeter, Exeter, United Kingdom.
Frontiers in genetics
|July 17, 2025
概括
基因组测序计划提供了个性化医疗,但也引发了对全球健康公平的伦理担忧. 解决这些问题需要整合多样化的观点,以确保对所有人的基因组学科学是公正和公平的.
科学领域:
- 基因组学和全球卫生公平性
- 生物伦理学与科学中的社会政治挑战
背景情况:
- 自从人类基因组项目以来,全球基因组学倡议已经扩大,受到包括个性化医学和公共利益在内的各种理性驱动.
- 然而,遗传技术在全球北方的集中加剧了医疗保健差异,而向全球南方的扩张带来了重大的社会政治和道德挑战.
研究的目的:
- 批判性地研究基因组学的扩展,特别是对其对全球健康公平的影响以及扩大差距的潜力.
- 解决由基因组学产生的社会政治和道德挑战,包括商业利益和历史权力不对称.
- 探索如何建立一个公正和公平的基因组学科学,使全球人口受益.
主要方法:
- 召集领先的基因组学从业者和批判科学研究学者.
- 借鉴正在进行的跨学科对话,整合自然科学和社会科学.
- 包括全球北方和全球南方的观点.
主要成果:
- 基因组学的扩展呈现了一种双重叙事:个性化医学的潜力与加剧全球健康不平等的风险相比.
- 人们担心基因组学与私人商业利益和价值提取的历史模式的纠.
- 需要一个基因组学科学,积极的中心正义和公平是突出.
结论:
- 需要对基因组学的科学和政治挑战进行全面和有基础的参与.
- 为了实现公正和公平的基因组学科学,需要解决科学力量和历史不公正的全球不对称性.
- 培养跨学科对话对于理解和实施全球公平基因组学实践至关重要.
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