在西班牙的风湿性关节炎患者中使用患者报告的结果措施和实施障碍:德尔菲研究
Esteban Rubio1, Mª José Moreno2, Adela Gallego3
1Hospital Universitario Virgen del Rocio, Seville, Spain.
Advances in therapy
|July 17, 2025
概括
西班牙的风湿病学家发现,患者报告的结果措施 (PROMs) 对于在风湿性关节炎 (RA) 护理中的共享决策非常有价值. 然而,实施障碍,如时间限制和缺乏集成的电子平台,阻碍了PROM的更广泛采用.
科学领域:
- 类风湿病学 类风湿病学
- 健康 结果 研究 研究 结果
- 数字健康数字健康
背景情况:
- 患者报告结果指标 (PROM) 越来越多地被认可为其在以患者为中心的护理中的作用.
- 了解PROM在类风湿性关节炎 (RA) 的当前使用和实施障碍对于改善西班牙的临床实践至关重要.
研究的目的:
- 调查在治疗RA患者的西班牙风湿病学家中PROMs的使用模式.
- 确定阻碍PROM在常规临床护理中有效实施的关键障碍.
- 评估ICHOM提出的特定PROM的适当性和可行性.
主要方法:
- 一项两轮的德尔菲研究与参与RA护理的西班牙风湿病学家进行.
- 该研究评估了ICHOM提出的7个PROM的当前使用,适当性和可行性.
- 在日常护理中实施PROMs的障碍被使用7点的利克尔特级别来探索.
主要成果:
- 虽然大多数风湿病学家 (79.4%) 同意PROM的重要性,但只有28.2%的人表示在日常护理中使用它们.
- 最常用的PROM是用于疼痛 (VAS),身体功能 (HAQ) 和疲劳 (VAS).
- 确定的主要障碍包括缺乏咨询时间 (84.6%) 和缺乏综合电子病历 (EMR) 平台 (87.9%).
结论:
- 西班牙风湿病学家认为PROM是共享决策 (SDM) 的宝贵工具,特别是在疼痛,疲劳和身体功能方面.
- 在其他领域,如与健康相关的生活质量 (HRQoL) 和工作生产率,PROMs的常规使用中存在显著的差距.
- 优化咨询时间和将PROM纳入EMR系统是促进更广泛采用和有效实施的重要步骤.
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