移植患者在社交媒体上的信息需求:一项定性研究
Bilgen Arikan1, Emine Sardagi2, Cigdem Erdem3
1Faculty of Health Sciences, Department of Nursing, Usak University, Usak, Türkiye.
BMC nephrology
|July 17, 2025
概括
移植患者和候选人在网上寻求健康信息,表达对生理和心理社会问题的医疗指导和支持的需求. 社交媒体平台为这些人提供同行支持和信息交换.
科学领域:
- 医学社会科学 医学社会科学
- 移植研究 移植研究
- 数字健康传播数字健康传播
背景情况:
- 越来越多地使用互联网和社交媒体获取健康信息.
- 接受移植的人和候选人积极在网上寻找和分享经验.
- 需要了解在线信息需要在移植.
研究的目的:
- 确定移植候选人和接受者的信息需求.
- 分析社交媒体帖子,寻找表达的需求和支持.
- 告知患者教育和远程护理策略.
主要方法:
- 使用内容分析进行定性研究设计.
- 分析了来自土耳其脏移植团体的496条Facebook帖子 (2023年1月至12月).
- 归纳方法用于识别主题和子主题.
主要成果:
- 四个主要主题:遇到的问题,医疗信息,器官需求和程序.
- 生理症状,药物获取和情绪困扰是常见的问题.
- 对医疗指导,伦理问题和程序信息的高需求.
结论:
- 患者需要有关生理和心理社会问题的信息.
- 社交媒体是表达需求和同行支持的重要平台.
- 推个性化教育和远程医疗服务.
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