开发一个在线息护理工具包治疗肝硬化
Kinjal Patel1, Amanda Brisebois2, Sara N Davison3
1Division of Gastroenterology, Department of Medicine, University of Alberta, Edmonton, Canada.
Canadian liver journal
|July 18, 2025
概括
息护理 (PC) 改善了肝硬化患者的生活质量,但未得到充分利用. 一个新的在线资源,cirrhosiscare.ca,为医疗保健提供者提供基于证据的PC信息,以解决这个差距.
科学领域:
- 肝病学 肝病学是一种肝病学.
- 抚慰性护理是一种缓解性护理.
- 数字健康战略 数字健康战略
背景情况:
- 肝硬化严重影响患者的生活质量和医疗保健资源利用率.
- 息治疗 (PC) 已被证明可以缓解慢性肝病患者的症状并提高他们的幸福感.
- 尽管有好处,但PC在慢性肝病患者中未得到充分利用.
研究的目的:
- 为医疗保健提供者开发一个可访问的,基于证据的在线资源,以治疗肝硬化.
- 为弥合慢性肝病患者的息治疗利用的差距.
主要方法:
- 一个多学科团队开发了"症状管理"部分的肝硬化护理.ca.ca.
- 内容创建涉及症状选择,材料开发,网站构建和代反.
- 这个过程有四个不同的阶段:症状选择,材料开发,网站创建和反/修订.
主要成果:
- 2021年3月启动的Cirrhosiscare.ca网站,包含12个详细的内容页面和4个寿命末期算法.
- 该资源已经获得了大量的用户参与,每月有10,000-12,000名新用户.
- 开发的内容得到了目标受众的积极欢迎.
结论:
- 该网站cirrhosiscare.ca是一个数字战略,旨在提高对肝息护理资源的认识和可访问性.
- 未来的计划包括持续的内容更新,与住院护理途径的整合,以及纳入初级保健计划.
- 持续传播和维护是这个在线息护理资源的长期成功的关键.
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