从童年到年轻成年后,在腕出生损伤后,上肢参与:一种定性研究
Shelby Rabb1, Laura Ireland1, Lexi Davidson1
1Department of Occupational Science and Occupational Therapy, Temerty Faculty of Medicine, University of Toronto, Toronto, ON, Canada.
Hand therapy
|July 18, 2025
概括
患有臂出生损伤 (BPBI) 的年轻人通过开发适应性策略和自我意识来导航生活过渡. 了解他们的生活经验对于改善BPBI儿童的过渡期护理至关重要.
科学领域:
- 儿科康复儿童康复中心
- 质量健康研究 质量健康研究
- 生命课程研究 生命课程研究
背景情况:
- 患者报告的数据表明,在腕出生损伤 (BPBI) 后,成年后参与限制.
- 对于年轻成人在生命过渡期间的BPBI生活经历,人们的理解有限.
- 自决理论为探索BPBI适应中的自主性,能力和相关性提供了一个框架.
研究的目的:
- 探索患有BPBI的年轻成年人的终身参与经验.
- 了解自主性,能力和相关性如何影响整个生命周期的参与.
- 为儿童BPBI患者的过渡期护理计划提供信息.
主要方法:
- 解释性描述 定性研究设计.
- 与9名年轻成年人 (19-34岁) 进行半结构化采访.
- 对面试成绩单进行主题分析,以确定参与的关键主题.
主要成果:
- 三个核心主题出现了: 导航日常生活, 导航不确定性, 和导航BPBI身份.
- 参与者从童年机会中发展了习惯性适应,培养了自我意识和自我倡导.
- 主要的生活过渡涉及有意识的重新学习和BPBI影响的重新整合,残疾可见性影响身份.
结论:
- 终身参与叙述为患有BPBI的成年人的经历提供了关键的见解.
- 通过了解这些生活经验,可以增强过渡期护理计划.
- 解决自主性,能力和相关性是支持BPBI患者一生的关键.
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