共同设计一个质量质量调查:质量和认知面试的调查结果
Clare O'Callaghan1, Joanne Brooker2, Sanuki Tissera3
1Caritas Christi and Department of Psychosocial Cancer Care (C.O.C.), St Vincent's Hospital Melbourne, Melbourne, Victoria, Australia; Department of Medicine (C.O.C.), St Vincent's Hospital, The University of Melbourne, Melbourne, Victoria, Australia.
Journal of pain and symptom management
|July 20, 2025
概括
患有间皮瘤 (PLM) 患者的患者报告结果 (PRO) 数据很少. 这项研究通过PLM反改进了一项PRO调查,提高了其与中皮瘤护理的相关性和可用性.
科学领域:
- 在瘤学瘤学.
- 患者报告的结果
- 定性研究是指质量研究.
背景情况:
- 间皮瘤是一种罕见的,具有有限患者报告结果 (PRO) 数据的侵袭性癌症.
- 了解患有间皮瘤 (PLM) 的人的经历对于改善护理至关重要.
研究的目的:
- 共同设计和完善一个PRO调查,用于维多利亚州间皮瘤结果注册表 (VMOR).
- 在生活质量和护理调查草案中收集PLM的观点.
- 通过检查PLM的观点和认知反应,为调查实施提供信息.
主要方法:
- 一个定性,共同设计的研究,使用半结构化和"大声思考"采访.
- 纳入了 EORTC QLQ-C30, AHPEQS 和人口/间皮瘤背景问题.
- 采用主题和内容分析来评估调查观点和认知过程.
主要成果:
- PLM为调查改进提供了有价值的反,建议内容和布局改进.
- 建议采用自由文本的答复选项,以减少混和负担.
- 一些参与者经历了特定调查问题的认知挑战,突出了清晰度的需要.
结论:
- 一个精致的,共同设计的VMOR PRO调查将为改善医疗保健提供对患者有意义的数据.
- 共设计和认知面试提高了调查的有效性.
- PRO数据收集应考虑并发症和其他外部因素的潜在影响.
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