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在先天性隔膜中过渡到成年,我们如何设计正确的服务?
S Kamphuis Lieke1, M Schnater Johannes2, C W Spaander Manon3
1Dept of Pulmonology, Erasmus MC, Rotterdam, the Netherlands.
Seminars in fetal & neonatal medicine
|July 20, 2025
概括
出生腹膜 (CDH) 幸存者需要终身,多学科的护理,因为不太了解疾病. 本次审查强调了从童年到成年期支持CDH患者的综合服务的需要.
科学领域:
- 儿科手术 儿科手术
- 新生儿重症监护中心
- 长期健康结果
背景情况:
- 对于先天性隔膜 (CDH) 幸存者的医疗保健重点已经从生存转向管理相关疾病.
- 越来越多的CDH患者活到成年,需要长期护理策略.
- 尚不清楚CDH相关疾病的自然进展和长期影响.
研究的目的:
- 审查CDH幸存者的童年和年轻成年期的结果.
- 强调对CDH患者终身,多学科护理的关键需求.
- 解决慢性健康状况的青少年过渡期护理方面的挑战.
主要方法:
- 对先天性腹膜幸存者的结局的文献综述.
- 对长期数据和有关相关疾病的证据进行分析.
- 探索过渡期护理计划中的挑战.
主要成果:
- CDH幸存者面临着持续的健康挑战,这些挑战在童年和青春期变得更加明显.
- 终身,多学科的护理对于管理各种医疗保健需求至关重要.
- 患有慢性疾病的青少年的过渡期护理存在重大挑战.
结论:
- 有效,终身的医疗保健服务对于先天性隔膜幸存者至关重要.
- 需要进一步的研究,以更好地了解CDH发病率的长期发展过程.
- 为优化对CDH患者终身护理模式提供了建议.
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