为患有Myhre综合征的父母和成年人写日记:使用反思性写作来帮助应对
Rachel Gottlieb1, Ashley W Wong1,2, Allison L Cirino1
1MGH Institute of Health Professions Genetic Counseling Program, Boston, Massachusetts, USA.
概括
记日记可能有助于一些患有Myhre综合征的人应对挑战. 虽然在这个小研究中没有统计学意义,但表达性写作显示出在这种罕见的遗传障碍社区中改善福祉的潜力.
科学领域:
- 遗传学 遗传学 是一个
- 心理学 心理学 心理学
- 医学遗传学 医学遗传学
背景情况:
- 迈尔氏综合征是一种罕见的,渐进性的遗传性疾病,具有重大的健康挑战.
- 由于诊断,患者和家长面临独特的心理社会压力因素.
- 记日记被探索为心理社会支持的潜在应对机制.
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