开发和可接受性测试的气管切除术决策支持视频的父母
Stephanie K Kukora1, Kerry Ryan2, Haoyang Yan3
1Division of Neonatology and Bioethics Center, Childrens Mercy Kansas City, Kansas City, MO, United States of America.
PEC innovation
|July 21, 2025
概括
视频干预中的同行家长叙述有助于家长了解儿科气管切除术的共享决策 (SDM). 这种资源赋予父母权力,减少孤立感,并支持参与关键的医疗保健选择.
科学领域:
- 儿科医疗保健服务 儿科医疗保健服务
- 患者教育 患者教育
- 分享决策的共同决策.
背景情况:
- 共同决策 (SDM) 过程对于面临关键儿科医疗保健决策的父母来说可能是复杂的.
- 了解父母的角色和他人经验对于有效的SDM至关重要.
研究的目的:
- 开发和评估使用同行家长叙述的床边干预,以增强家长对SDM过程的理解.
- 支持家长在儿童气管切除术的决策过程中发挥他们的作用.
主要方法:
- 八名有气管切除术决策经验的家长分享了他们的故事,以进行视频干预.
- 视频是通过父母和临床医生的反来代地开发的.
- 18名家长回顾了视频,并提供了关于视频可接受性和临床实用性的反.
主要成果:
- 家长们发现视频很有帮助,欣赏了不同的观点和情感联系.
- 这种干预被认为是为了让家长能够更积极地与医疗团队接触.
- 参与者认为,在面对困难决策时,视频减少了孤立感.
结论:
- 以家长观点为特色的基于视频的教育可以有效地支持儿童气管切除术病例中的SDM.
- 这种方法可以补充现有的战略,以加强家长参与关键医疗保健决策.
- 类似的基于叙事的干预措施可能会使面临其他重大医疗选择的家庭受益.
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