多重输血的兄弟姐妹的心理社会问题 Thalassemia 患者
Pratibha Lodhi1, Shweta Sharma2, Prachi Singh3
1Department of Pediatrics, Bundelkhand Medical College, Sagar, IND.
Cureus
|July 21, 2025
概括
贝塔thalassemia患者的兄弟姐妹经历轻度至中度的心理压力,女性表现出更高的焦虑和抑郁率. 解决兄弟姐妹的福祉对于整体的家庭护理至关重要.
科学领域:
- 儿科心理学 儿科心理学
- 血液学 血液学 血液学
- 家庭研究 家庭研究
背景情况:
- Thalassemia 严重影响患者,家庭和兄弟姐妹的心理健康.
- 解决兄弟姐妹的心理社会挑战对于整体家庭的运作和福祉至关重要.
研究的目的:
- 为了评估多次输血β-thalassemia患者的兄弟姐妹的心理压力.
- 使用儿科症状检查清单-17 (PSC-17) 和感知压力表 - 儿童 (PSS-C) 来评估心理困扰.
主要方法:
- 一项横截面的观察性研究招募了95名年龄在2-18岁的兄弟姐妹,他们陪伴着β-thalassemia患者.
- 心理社会压力使用PSC-17 (4-17岁) 和PSS-C (5-18岁) 来衡量.
- 回归,潜在类和调解分析检查了社会人口统计学因素和症状概况.
主要成果:
- 在完成PSS-C的71名参与者中,超过一半报告中度 (53.5%) 或低 (46.5%) 的压力.
- 在PSC-17查中,分别发现了31.6%的内化症状和9.5%的注意力/外化问题.
- 年龄较大与内化问题相关;男性性别具有较低的ADHD/外化症状. 潜在类别分析确定了不同的高和低症状组.
结论:
- 血病患者的兄弟姐妹表现出轻度至中度的心理压力,焦虑和抑郁是最常见的.
- 与男性相比,女性的这些疾病发生率更高.
- 建议采用整体方法,将兄弟姐妹的心理社会福祉纳入以家庭为中心的护理模式.
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