肝细胞癌患者的教育,财务,后勤,情感和社会需求
Debbiesiu L Lee1, Sophia Hon1, Daniela Prieto Bello2
1Department of Educational and Psychological Studies, School of Education and Human Development, University of Miami, Coral Gables, Florida, USA.
肝细胞癌 (HCC) 患者的患者导航计划应涉及教育,财务,护理协调,心理健康和社会支持. 调整干预措施以满足这些确定的需求可以改善患者的治疗结果.
科学领域:
- 在瘤学瘤学.
- 医疗保健服务研究 医疗服务研究
- 患者导航 患者导航
背景情况:
- 患者导航对于成功的癌症治疗结果至关重要.
- 肝细胞癌 (HCC) 患者的需要需要量身定制的导航程序.
- 识别特定的障碍和支持对于HCC治疗至关重要.
研究的目的:
- 确定肝细胞癌 (HCC) 患者的综合需求.
- 确定阻碍HCC成功治疗的障碍.
- 定义有效的HCC患者护理所需的具体支持.
主要方法:
- 与42名参与者 (患者,护理人员,倡导者,协调员,提供者) 进行了定性访谈.
- 不同的提供者专业包括肝病学,瘤学,放射学等.
- 来自南佛罗里达州医疗保健系统和患者倡导组织的参与者.
主要成果:
- 出现了五个主要主题:教育/健康素养,财务资源,护理协调,情绪/心理健康管理和社会支持.
- 在HCC治疗中,子主题进一步详述了患者和护理人员的具体需求.
- 确定的需求突出了针对性干预开发的领域.
结论:
- 该研究提供了对HCC患者和护理人员需求的关键见解.
- 利益相关者的投入确定了针对性干预的多维需求.
- 有效的HCC导航必须解决所有已识别的患者需求领域.
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