威胁疾病的感知和早期复发性复发性多发性硬化症的相关因素
Rocío Gómez-Ballesteros1, Susana Sainz de la Maza2, Mónica Borges3
1Medical Department, Roche Farma, Madrid, Spain.
Frontiers in psychiatry
|July 23, 2025
概括
许多早期复发性复发性多发性硬化症患者认为他们的病情具有威胁性,受到残疾和绝望等因素的影响. 了解这些感知是有效的患者支持和管理的关键.
科学领域:
- 神经学 神经学
- 心理学 心理学 心理学
背景情况:
- 多发性硬化症 (MS) 是年轻人的神经障碍的主要原因.
- 早期复发性复发性多发性硬化症 (RRMS) 诊断显著影响患者的生活,影响调整,应对和福祉.
- 关于患者在RRMS诊断阶段如何感知疾病的研究有限.
研究的目的:
- 评估早期RRMS患者的疾病感知.
- 确定与该人口的疾病感知相关的因素.
主要方法:
- 一项多中心,非干预性研究包括189名成年RRMS患者 (疾病持续时间≤3年,EDSS 0-5.5).
- 简短疾病感知问卷 (B-IPQ) 评估了疾病的表象.
- 患者报告的结果包括疼痛,疲劳,情绪,生活质量,症状严重程度,绝望,耻辱,认知和身体功能.
主要成果:
- 36.5%的患者报告了中度至高度的威胁性疾病感知.
- 较高的EDSS分数,症状严重程度,生活质量差,感知到的耻辱和绝望预测了威胁疾病的感知.
- 45.5%的患者将他们的疾病归因于心理因素.
结论:
- 在早期的RRMS中,威胁性疾病的感知很普遍.
- 识别和解决这些感知和相关因素对于患者管理至关重要.
- 个性化干预可以改善患者的应对能力和幸福感.
相关概念视频
Factors Affecting Illness
4.4K
When a person's physical, emotional, intellectual, social development or spiritual functioning is compromised, this deviation from a healthy normal state is called illness. Illness creates stress that in turn harms individuals. Irritation, anger, denial, hopelessness, and fear are behavioral and emotional changes an individual experiences in the phases of illness. A variety of factors influence a person's health and well-being.
For instance, risk factors are connected to illness,...
For instance, risk factors are connected to illness,...
4.4K
Psychological and Sociocultural Causes of Schizophrenia
190
Schizophrenia, a complex psychiatric disorder, has been historically misunderstood. Early psychological theories attributed its origins to childhood trauma and unresponsive parenting. However, contemporary research largely rejects these notions, favoring the vulnerability-stress hypothesis. This model proposes that individuals with a genetic predisposition to schizophrenia may develop the disorder following exposure to significant environmental stressors. Notably, studies on high-risk...
190
Classification of Illness
8.0K
The meaning of illness is individualized to each person who experiences an alteration in health. In contrast, disease is a medical term indicating a pathological change in the structure and function of the body or mind. It is a condition that has specific symptoms and boundaries.
An illness is a response to a disease in which the person's level of functioning is changed compared with a previous level. The general classification of illness includes acute and chronic.
Acute illness is severe...
An illness is a response to a disease in which the person's level of functioning is changed compared with a previous level. The general classification of illness includes acute and chronic.
Acute illness is severe...
8.0K
Models of Health Promotion and Illness Prevention II
1.7K
The person's health status fluctuates continually, varying from being in good health to becoming ill and returning to being healthy. To understand the concept of illness prevention, there are two models. First, the health-illness continuum model is a graphic representation of an individual's wellness. It states that a person is considered healthy in the absence of physical disease and the presence of good emotional health.
The agent-host-environment model states that disease results...
The agent-host-environment model states that disease results...
1.7K
Factors Affecting Perception
1.9K
Perception is influenced by perceptual set, context, motivation, and emotion. Perceptual set, or perceptual expectancy, refers to the tendency to perceive things in a particular way, influenced by previous experiences and expectations. This phenomenon affects the interpretation of stimuli, creating a set of mental tendencies and assumptions that impact sensory perceptions of sound, taste, touch, and sight.
An illustrative example of a perceptual set is the scenario where an airline pilot told...
An illustrative example of a perceptual set is the scenario where an airline pilot told...
1.9K
Schizophrenia
228
Schizophrenia, a term introduced by Swiss psychiatrist Eugen Bleuler in 1911, describes a severe psychological disorder marked by profound disruptions in attention, thought processes, language, emotion, and interpersonal relationships. The core feature of schizophrenia is psychosis — a state characterized by a fundamental detachment from reality. This disconnection manifests through distorted logic, impaired perception, and atypical behavior, severely affecting the lives of those...
228


