儿科家庭终身护理的挑战,益处和未来方向:一个定性研究
Tiina Jaaniste1,2, Mia Helyar1,2, Marisa Eamens3
1Department of Palliative Care, Sydney Children's Hospital, Randwick, NSW, Australia.
Journal of palliative care
|July 24, 2025
概括
社区息护理 (CPC) 护士在儿科生命终端 (EOL) 家庭护理中面临挑战,但在患者自主性方面感到满意. 增加儿科培训和支持对于改善这一至关重要的服务至关重要.
科学领域:
- 抚慰性护理是一种缓解性护理.
- 儿科护理 儿科护理
- 社区卫生服务 社区卫生服务
背景情况:
- 家庭为儿童提供终身护理 (EOL) 越来越普遍.
- 社区息护理 (CPC) 护士通常在没有专门的儿科培训的情况下提供这种护理.
- 了解CPC护士的观点对于提高儿科EOL服务至关重要.
研究的目的:
- 从澳大利亚新南威尔士州 (NSW) 的CPC护士的角度探讨家庭儿科EOL护理的挑战和好处.
- 确定改善社区基础儿科EOL护理的未来方向.
主要方法:
- 与11名CPC护士进行了半结构面试.
- 使用反射主题分析来分析采访数据.
主要成果:
- 关键的挑战包括有限的资源获取,儿科护理的复杂性和家庭心理因素.
- 确定的好处包括患者和家庭的自主权,家庭的舒适性和护士的工作满意度.
- 护士强调需要加强教育,支持和跨学科合作.
结论:
- CPC护士需要更专业的儿科培训和经验,以有效地管理家庭为儿童提供EOL护理.
- 需要进行临床和组织改进,以更好地支持这些护士和家庭.
- 加强协作和资源的可用性可以优化在家中提供儿科EOL护理.
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