让患者参与器官移植列表会议:一项调查研究
Aditya S Pawar1, Nicole Scholes-Robertson2, Kristen Kennefick3
1Beth Israel Deaconess Medical Center, Boston, MA, USA; Harvard Medical School, Boston, MA, USA.
概括
患者广泛支持参与器官移植列表会议,以提高透明度和信任. 然而,移植团队成员表现出较少的热情,突出了患者参与这些关键决策的观点上的差距.
科学领域:
- 移植医学 移植医学
- 医疗保健服务研究 医疗服务研究
- 患者倡导 患者倡导
背景情况:
- 器官移植列表的决定涉及多学科委员会评估候选人的资格.
- 建议患者参与这些会议,以提高透明度,信任和以患者为中心的护理.
研究的目的:
- 评估和比较患者和医疗保健专业人士对患者参与器官移植列表委员会会议的观点.
- 确定关键主题和潜在的障碍或促进者,患者参与移植选择过程.
主要方法:
- 美国移植学会 (AST) 和国家脏基金会 (NKF) 的1349名成员接受了在线调查.
- 受访者包括907名患者,护理人员和家庭成员,以及442名移植团队成员.
- 分析了关于支持患者参与的定量数据和对信任的感知影响,并进行了定性主题分析.
主要成果:
- 大多数患者 (77%) 支持参加列表会议,而移植团队成员中只有27%.
- 患者 (79%) 强烈同意参与增强了信任,而只有37%的移植团队成员赞同这一观点.
- 定性主题包括以患者为中心的重要性,可行性问题,潜在的权衡,以及需要共同的基础.
结论:
- 患者和移植团队成员对患者参与列表委员会会议的看法存在显著差异.
- 解决这些对比的观点对于开发器官移植合作决策框架至关重要.
- 需要进一步探索,以弥合这一差距,并有效地整合患者和专业人士的意见.
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