学习与血液癌症和超越癌症生活:全面患者视角的叙事研究
Karine Bilodeau1, Cynthia Henriksen2, Camila Aloisio Alves3
1Faculty of Nursing, University of Montreal, Montreal, Quebec, Canada; Maisonneuve-Rosemont Hospital Research Center, Montreal, Quebec, Canada.
Seminars in oncology nursing
|July 26, 2025
概括
这项研究探讨了患有血液癌症的个人的生活经历,确定了学习与疾病和其复发生活的四个不同的阶段. 了解这些阶段可以改善患者的护理.
科学领域:
- 在瘤学瘤学.
- 定性研究是指质量研究.
- 患者体验 患者体验
背景情况:
- 血液癌症在患者一生中存在独特的挑战.
- 了解患者的旅程对于有效的护理和支持至关重要.
研究的目的:
- 描述和概念化患有血液癌症的个体的生活经历.
- 探索整个癌症轨迹的体验式学习过程.
主要方法:
- 叙事定性方法论.叙事定性方法论.
- 与12名参与者进行远程半结构面试.
- 混合感应/演内容分析.
主要成果:
- 他们确定了癌症治疗轨迹的四个阶段:损失和破坏,暂停生活,重新发现和个人发展以及重新开始.
- 经验式学习与护理轨迹的各个阶段,关键事件和涉及的个人密切相关.
结论:
- 血液癌症的治疗轨迹显著影响学习与疾病一起生活.
- 这些发现可以提高瘤护士对患者旅程的敏感性和理解.
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