过渡和转移经验及其相关的新兴1型糖尿病成年人
Mikaela Vallmark1,2, Anna Lena Brorsson3,4, Mariela Acuña Mora5
1University of Gothenburg Institute of Health and Care Sciences, Gothenburg, Västra Götaland County, Sweden mikaela.hallstrom@gu.se.
BMJ open diabetes research & care
|July 27, 2025
概括
患有1型糖尿病 (T1D) 的新兴成年人报告了良好的沟通,但对成年人护理过渡的准备不佳. 赋权和自我效能与积极的过渡经验相关,突出了改善护理规划的领域.
科学领域:
- 内分泌学 在内分泌学.
- 青少年医学 青少年医学
- 医疗保健管理的管理
背景情况:
- 患有慢性疾病的新成年人,如1型糖尿病 (T1D),在从儿科到成人医疗保健系统的过渡期间面临着独特的挑战.
- 有效的过渡准备,包括知识获取和自我管理技能,对于提高准备能力和患者体验至关重要.
- 关于新兴成年人在关键护理转移期间的具体经历和相关因素的研究有限.
研究的目的:
- 描述T1D新生成人在转移到成人糖尿病诊所之前的过渡性护理经验.
- 探索与这些过渡性护理经验相关的潜在相关性,如赋权和自我效能.
主要方法:
- 一项涉及162名T1D新兴成年人的横截面研究,遍布瑞典8家成人糖尿病诊所.
- 使用过渡期护理经验问卷 (TEXP-Q),一种新的患者报告经验测量 (PREM),以评估经验.
- 研究了TEXP-Q得分与人口,临床和心理社会变量 (如性别,HbA1c,赋权和糖尿病自我效能) 之间的相关性.
主要成果:
- 总体TEXP-Q得分平均为3.6±0.7,医疗保健提供者沟通得分较高 (4.5±0.7),过渡和转移准备得分较低 (3.0±1.1).
- 与女性相比,男性报告了对过渡和转移的更好准备 (p=0.004).
- 积极的过渡经历与更高的赋权水平 (rho=0.34),糖尿病自我有效性 (rho=0.32) 和对成人护理医疗环境的满意度 (rho=0.36) 显著相关.
结论:
- 一项新的测量,TEXP-Q,显示,虽然T1D的新兴成年人对提供者沟通感到满意,但他们通常觉得对过渡到成人护理的准备不足.
- 研究的相关性并不能强烈预测过渡经历,这表明需要进一步研究.
- 在临床实践中实施TEXP-Q可以为评估和改善T1D新生成人过渡期护理提供信息.
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