公众参与癌症研究:利用光声进行协作评估
Piotr Teodorowski1, Melanie McInnes1, Glen Dale2
1Faculty of Health Sciences and Sport, University of Stirling, Pathfoot Building, Stirling, FK9 4LA, United Kingdom, 44 1786 466362.
JMIR cancer
|July 28, 2025
概括
公共贡献者通过分享生活经验,有意义地塑造了癌症研究. 早期参与和牢固的关系增强了影响力,尽管在整个项目中希望有更多机会进行多样化的参与.
科学领域:
- 在瘤学瘤学.
- 医疗保健服务研究 医疗服务研究
- 患者和公众参与 (PPI)
背景情况:
- 具有癌症经验的公共贡献者参与优化疑似癌症患者的诊断途径.
- 参与涉及项目设计,分析和传播与研究和临床团队一起.
- 有意义的公众参与癌症研究需要进一步了解有效的实践.
研究的目的:
- 评估两项癌症研究项目的公众参与过程.
- 评估公共贡献者与研究团队之间的合作的有效性和性质.
主要方法:
- 参与研究团队和公众贡献者的协作评估.
- 公共贡献者用来记录他们的参与经验的光声方法.
- 分析使用4维框架和照片叙事解释来捕捉贡献者的观点.
主要成果:
- 公共贡献者报告了强烈的声音,他们的反在很大程度上得到了实施.
- 讨论集中在相关主题上,但参与机会主要是研究团队驱动的.
- 照片语音叙述说明了贡献者的信心和满意度的演变.
结论:
- 公共贡献者可以在整个癌症研究生命周期中有意义地参与其中.
- 强大的关系和信任对于具有影响力的公众参与至关重要.
- 从资助阶段开始,更早地让公共贡献者参与,可以加强研究的塑造和参与的多样性.
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