在多发性硬化症患者的健康干预研究中综合知识翻译 (iKT) 的知识用户观点:一种定性描述性研究
Gregory Feng1, Robert Simpson1, Nanette Lai2
1KITE Research Institute (Toronto Rehabilitation Institute), University Health Network, Toronto, Canada.
Research involvement and engagement
|July 28, 2025
概括
多发性硬化症研究中的综合知识翻译 (iKT) 需要更清晰的定义和战略,以便有意义地参与知识用户. 未来的工作应该探索知识用户如何领导研究活动,以及iKT促进者的作用.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 患者参与 患者参与
- 多发性硬化症研究研究
背景情况:
- 综合知识翻译 (iKT) 促进了健康研究中的研究者-知识用户合作.
- 很少有研究研究iKT的过程,特别是在多发性硬化症 (MS) 研究中.
- 这项研究探讨了iKT从对MS患者进行的正念干预研究的观点.
研究的目的:
- 探讨iKT小组成员和合作者在健康研究中使用iKT的观点.
- 确定与iKT参与多发性硬化症研究相关的关键主题,障碍和促进者.
- 为iKT在健康干预研究中的未来应用提供信息.
主要方法:
- 使用半结构面试进行的定性描述性研究.
- 采访通过Zoom或微软Teams (20-30分钟) 进行.
- 使用感应性主题分析分析数据,以患者参与框架为指导.
主要成果:
- 采访了8名ICT合作伙伴 (5名小组成员,3名合作者).
- 确定的主题:定义iKT,激励,建立网络,平衡观点,障碍/促进者.
- 强调需要更清晰的ICT定义和操作化,并讨论了合作伙伴的代表性.
结论:
- 调查结果为实施iKT.KT的团队提供了考虑因素.
- 未来的研究应该集中在最大限度地提高有意义的知识用户参与和领导力.
- 调查iKT促进者的作用是一个潜在的未来方向.
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