支持患者参与的简单语言摘要:来自HTAi患者和公民参与利益集团 (PCIG) 的经验教训和指导
Martin Andrew Coombes1, Kate Morgan2, Jose Diaz3
1Opened Door Consultancy Limited, Edinburgh, UK.
概括
简单的语言摘要显著提高了患者参与卫生技术评估 (HTA) 的情况. 这个模板赋予了患者群体权力,减少了准备时间,并提高了对 HTA 流程贡献的信心.
科学领域:
- 医疗技术评估 (HTA) 是指对医疗技术进行评估.
- 患者和公民参与健康技术评估
- 证据综合和沟通
背景情况:
- 患者参与对于有效的卫生技术评估 (HTA) 至关重要.
- 可访问的信息是患者组织对HTA有意义的贡献的关键.
- 开发了一种国际模板,用于新药的简单语言摘要.
研究的目的:
- 评估一个简单语言摘要模板的潜力,以增强患者组织向HTA机构提交的文件.
- 收集有关模板在HTA流程中的实施的反.
- 为支持患者参与HTA提供建议.
主要方法:
- 在澳大利亚 (2021) 和英格兰 (2022) 进行的患者组总结信息模板试点.
- 通过研讨会,调查,利益相关者访谈,公众咨询和咨询委员会收集反.
- 国际HTA患者和公民参与HTA利益集团的评估.
主要成果:
- 简单的语言摘要增加了患者组织的信心,并减少了HTA输入的准备时间.
- 非专家的利益相关者发现摘要有价值,可以提高理解.
- 发现的挑战包括缓解偏见,资源配置和流程集成.
结论:
- 简单的语言总结方法具有显著的潜力,可以加强患者组织参与HTA.
- 建议包括多利益相关者团体,早期摘要访问和与当地法规保持一致.
- 为HTA机构提供指导,以有效支持患者参与.
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