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与生命数量相比,患者对生命质量的看法 关于轨道外
Kalpesh Hathi1, Colin MacKay1, Robyn Macfarlane2
1Department of Surgery, Division of Otolaryngology-Head and Neck Surgery, Dalhousie University, Halifax, Nova Scotia, Canada.
概括
面临轨道化 (OE) 的患者优先考虑生活质量,接受重大风险以避免它. 这强调了在癌症护理中需要节省眼睛的策略和以患者为中心的决策.
科学领域:
- 在瘤学瘤学.
- 眼科医生 眼科 眼科
- 生活质量研究 研究 生命质量研究
背景情况:
- 轨道化 (OE) 显著影响患者的美容,功能和心理社会福祉.
- 新兴的节省眼睛的策略为OE提供了替代方案,但可能会损害瘤学的结果.
- 患者对质量与生命数量的看法在治疗决策中至关重要.
研究的目的:
- 在考虑OE与替代治疗时,评估患者对生活质量的看法.
- 量化患者愿意接受的风险,以避免OE.
- 确定影响患者关于OE决策的关键因素.
主要方法:
- 混合方法研究,涉及定量健康实用任务和定性患者访谈.
- 51名患有头部/部皮肤恶性瘤的患者参与了这项研究.
- 通过使用时间权衡和标准博任务以及开放式讨论来评估健康状态实用值 (HSUV).
主要成果:
- 患者愿意接受40.6%的死亡风险或放弃3.2年的生存期以避免OE.
- 对OE的计算HSUV为0.68.8
- 关键的决策因素包括家庭,医疗保健的看法,年龄,社会后果和风险承受能力.
结论:
- 患者的生活质量是关于OE的决定的主要考虑因素.
- 患者表现出愿意接受相当大的风险,以避免OE.
- 强调节省眼睛技术和共享决策的重要性,以患者为中心的护理,平衡生存与生活质量.
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