患者每天通过移动应用程序报告症状显示,患者的感知和医生的解释之间存在显著差异
Cvetka Grašič Kuhar1,2, Nina Privšek1,3, Marjetka Sraka1,2
1Department of Medical Oncology, Institute of Oncology Ljubljana, Ljubljana, Slovenia.
Frontiers in oncology
|July 30, 2025
概括
通过手机应用程序,患者报告的症状几乎是化学疗法期间医生评估的两倍. 这凸显了电子患者报告结果 (ePRO) 对于全面捕捉症状的价值.
科学领域:
- 在瘤学瘤学.
- 数字健康数字健康
- 患者报告的结果
背景情况:
- 电子患者报告结果 (ePRO) 在医疗保健中越来越重要.
- 评估患者和临床医生之间的症状报告差异对于有效治疗至关重要.
研究的目的:
- 为了比较患者使用移动应用程序 (m-app) 和医生评估之间的症状报告.
- 评估可用性和患者/临床医生对m-app的满意度.
主要方法:
- 一项前性队列研究,涉及46名接受化疗的早期乳腺癌患者.
- 每天通过Android m-app记录症状,并每月提供生活质量调查问卷.
- 患者报告的结果和医生评估之间的症状频率和等级的比较.
主要成果:
- 与医生相比,患者报告的明显症状数量几乎是医生的两倍 (75对49).
- 患者报告中的症状频率和强度显著更高 (p<0.001).
- 疲劳,失眠和口腔干燥非常普遍,但医生往往没有报告. 生活质量普遍下降,特别是在手臂/肩膀问题上有所改善.
结论:
- 通过m-app和临床评估报告的患者结果之间存在重大差异,这表明患者体验的潜在不足.
- 该m-app是捕捉系统性乳腺癌治疗期间的副作用的宝贵工具.
- 整合ePRO对于准确评估患者状况至关重要.
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