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在成年人炎症性肠道疾病的多模式自助干预的偏好,可接受性和利用:与患者和临床医生实用多中心研究

Chung Sang Tse¹, Melissa G Hunt², James D Lewis¹

¹Division of Gastroenterology and Hepatology, University of Pennsylvania, Philadelphia, PA, USA.

Inflammatory bowel diseases

|July 30, 2025

概括

很少有炎症性肠病患者使用自助资源,但大多数人认为这是可以接受的. 多模式资源是可行的信息,支持和管理IBD.

科学领域:

胃肠病学胃肠病学
数字健康数字健康
患者支持患者支持

背景情况:

对患者和临床医生对炎症性肠病 (IBD) 自助资源的态度的理解有限.
现有的研究强调了慢性疾病自助的好处,但IBD特定数据很少.

研究的目的:

探索患者和临床医生在IBD中的多式自助资源的经验.
评估IBD患者中自助工具的可接受性,偏好和使用情况.

主要方法:

展望性,融合的并行混合方法研究 (通过教育,参与和赋权资源来优化信心 - CORE).
参与了5个胃肠病实践,并提供了5个IBD特定的多式联络自助资源.
使用电子调查和与患者和提供者聚焦小组,以及统计分析.

主要成果:

在536名IBD患者中,只有3.7%先前使用了自助资源,但80%接受了提供的资源.
健康信心较低的患者和女性更有可能选择资源.
异步资源 (书籍,应用程序) 使用率高于同步资源 (帮助中心,同行指导).

结论:

尽管之前的使用率很低,但大多数IBD患者发现多式联络自助资源是可以接受和可行的.
临床医生缺乏时间和知识,对推自助资源构成障碍.
自助资源可以帮助IBD患者收集信息,建立社区和自我管理.

关键词:

可以接受的可接受性.健康信心健康的信心偏好偏好偏好自助自助的方法自己管理的自我管理.

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