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相关概念视频

Ethics in Research01:56

Ethics in Research

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Today, scientists agree that good research is ethical in nature and is guided by a basic respect for human dignity and safety. However, this has not always been the case. Modern researchers must demonstrate that the research they perform is ethically sound.
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Updated: Sep 13, 2025

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
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验证代码设计的儿科患者报告经验测量:一个研究协议.

Karlen R Barr1,2, Jessica Nikolovski3,4, James R John1,5

  • 1Academic Unit of Infant, Child and Adolescent Psychiatry, South Western Sydney Local Health District, Liverpool, New South Wales, Australia.

BMJ paediatrics open
|July 30, 2025
PubMed
概括
此摘要是机器生成的。

一种新的患者报告体验测量 (pPREM) 正在为澳大利亚医院的儿童进行验证. 这种工具可以确保儿童的声音在他们的医疗保健经验中被听到.

关键词:
儿童健康 儿童健康患者权利 患者权利

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科学领域:

  • 儿科医疗保健研究的研究.
  • 测量患者体验的测量方法
  • 医疗服务研究 医疗服务研究

背景情况:

  • 患者报告经验测量 (PREM) 对于将患者的观点纳入医疗保健至关重要.
  • 儿童有权参与有关其照顾的决定.
  • 目前,澳大利亚医疗机构没有经过验证,标准化的儿科PREM (pPREM),现有的工具往往不是与儿童共同设计的.

研究的目的:

  • 为了验证一个新的儿科患者报告经验测量 (pPREM),用于澳大利亚医疗保健机构.
  • 确保儿童的声音被纳入医疗保健提供.
  • 开发一种自我报告,本地验证和标准化的pPREM.

主要方法:

  • 这项研究涉及多达25名儿童 (6-11岁) 的认知访谈,这些儿童最近被住院治疗.
  • 在澳大利亚六家医院对大约180名儿童进行人口测试,以评估有效性,可靠性和可行性.
  • 通过采访与25-30名医疗保健利益相关者进行实施过程评估.

主要成果:

  • 该研究目前处于验证阶段,结果正在等待.
  • 认知面试将为改进pPREM项目提供信息.
  • 人口测试将提供关于pPREM的心理特征和可行性的数据.

结论:

  • 验证新的pPREM对于改善澳大利亚儿科患者体验至关重要.
  • 开发的pPREM旨在以儿童为中心,适合常规临床使用.
  • 这些发现将有助于加强澳大利亚医院对儿童的以患者为中心的护理.