从对话到行动:为代表性不足的人口参与包容性研究的社区建议
Samuel Byiringiro1, Grace C Bellinger2, Akunna Mezu1,3
1School of Nursing, Johns Hopkins University, Baltimore, Maryland, USA.
概括
为了提高临床研究的多样性,研究人员必须建立信任,并通过量身定制的推广和可访问的住宿来吸引黑人/非洲裔美国人和拉丁裔等代表性不足的群体. 这增强了健康公平.
科学领域:
- 健康 公平 卫生 公平
- 临床研究 临床研究
- 社区参与 社区参与
背景情况:
- 临床研究对于医学进步至关重要.
- 黑人/非洲裔美国人和拉丁裔人口在临床试验中代表性不足.
- 这种差异导致这些群体的健康状况较差.
研究的目的:
- 检查临床研究招聘和参与的观点.
- 识别障碍和解决方案,使代表性不足的人口参与.
- 为更具包容性的临床研究策略提供信息.
主要方法:
- 与马里兰州巴尔的摩市59名社区成员和代表性不足的团体的领导人进行了焦点小组讨论 (FGD).
- 利用社区外展,研究登记册和参与者招聘的推.
- 应用了以英语或西班牙语进行的FGD定性数据的专题分析.
主要成果:
- 确定了参与研究的关键障碍,包括缺乏信任和参与.
- 建议社区知情解决方案:建立关系,透明沟通,多式联络,以人为中心的住宿.
- 展示了建议如何提高临床研究的相关性,严谨性和影响力.
结论:
- 黑人/非裔美国人和拉丁裔个体在研究中的代表性不足阻碍了健康公平.
- 研究人员必须采用定制的,与社区一致的包容性参与策略.
- 实施这些战略可以促进更多的参与和改善健康结果.
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