在全州癌症需求评估中捕捉社区观点:在线焦点小组研究
Jessica R Thompson1,2, Keeghan Francis2, Caree R McAfee2
1Department of Health Policy and Administration, The Pennsylvania State University, University Park, PA, United States.
JMIR cancer
|July 31, 2025
概括
肯塔基州的在线焦点小组确定了社区对癌症护理的需求和解决方案. 研究结果强调了改善获取信息,查和患者与医疗服务提供者的沟通,以减少癌症差异.
科学领域:
- 公共卫生 公共卫生
- 癌症研究 癌症研究
- 健康差异 在健康上的差异
背景情况:
- 肯塔基州面临的癌症发病率和死亡率在美国最高.
- 全州范围的需求评估在捕获各种农村和城市数据方面存在挑战.
- 一个指导委员会在2021年启动了一项多方法,全州癌症需求评估 (CNA).
研究的目的:
- 通过在线聚焦小组记录整个癌症护理连续性的社区资源和需求.
- 探索健康的社会决定因素对健康差异人口的影响.
- 为肯塔基州癌症相关护理的未来优先事项提供信息.
主要方法:
- 进行了11个在线焦点小组,其中包括51名来自不同地理和人口背景的成年肯塔基州居民.
- 利用一个半结构化的讨论指南,专注于癌症护理连续性,健康的社会决定因素和健康公平.
- 进行了成绩单的定性逐行分析,以确定关键主题.
主要成果:
- 确定了17个主要主题和83个与癌症护理社区需求和解决方案相关的子主题.
- 关键需求包括可访问的信息,可信的消息传递,对查/治疗的实际支持 (成本,运输) 和保险导航.
- 参与者强调了文化敏感的沟通和安全的护理空间,以解决耻辱和改善健康公平.
结论:
- 在线焦点小组有效地捕捉了各种各样的,全州范围内的与癌症有关的需求和解决方案.
- 研究结果支持针对性的干预措施,以减少风险,克服查/治疗障碍,患者导航和沟通.
- 这项研究为未来的计划和研究提供了宝贵的理解,以减少肯塔基州的癌症发病率和死亡率.
更多相关视频
14:43A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting
Published on: January 12, 2018
12.0K
06:28E-Patient Counseling Trial E-PACO: Computer Based Education versus Nurse Counseling for Patients to Prepare for Colonoscopy
Published on: August 1, 2019
8.4K
相关概念视频
Cancer Prevention
6.3K
Several factors can increase the risk of cancer in an individual. About 50% of cancer cases can be prevented by adopting a healthy lifestyle, regular exercise, eating healthy, and following a modest cancer prevention diet. Epidemiological studies have consistently shown that populations with vegetable and fruit-rich diets have reduced the incidence of cancer. On the other hand, populations who have a diet rich in animal fat, red meat, junk food, or high calories are predisposed to cancer.
Some...
Some...
6.3K
Mouse Models of Cancer Study
5.7K
Mice have long served as models for studying human biology and pathology because of their phylogenetic and physiological similarity with humans. They are also easy to maintain and breed in the laboratory, and hence, many inbred strains are now available for research. Studies on mice have contributed immeasurably to our understanding of cancer biology.
The development of transgenic, knockout, and knock-in mice has led to an exponential increase in their use as model organisms in research,...
The development of transgenic, knockout, and knock-in mice has led to an exponential increase in their use as model organisms in research,...
5.7K
Cancer Therapies
8.0K
Cancer therapies are various modes of treatment, such as surgery, radiation therapy, and chemotherapy that are administered to cancer patients.
However, cancer treatments can pose several challenges, as therapies used to kill cancer cells are generally also toxic to normal cells. Moreover, cancer cells mutate rapidly and can develop resistance to chemical agents or radiation therapy. Besides, all types of cancer cells may not respond to the same therapy. Some cancer cells respond to one...
However, cancer treatments can pose several challenges, as therapies used to kill cancer cells are generally also toxic to normal cells. Moreover, cancer cells mutate rapidly and can develop resistance to chemical agents or radiation therapy. Besides, all types of cancer cells may not respond to the same therapy. Some cancer cells respond to one...
8.0K
Cancer Survival Analysis
456
Cancer survival analysis focuses on quantifying and interpreting the time from a key starting point, such as diagnosis or the initiation of treatment, to a specific endpoint, such as remission or death. This analysis provides critical insights into treatment effectiveness and factors that influence patient outcomes, helping to shape clinical decisions and guide prognostic evaluations. A cornerstone of oncology research, survival analysis tackles the challenges of skewed, non-normally...
456
Longitudinal Research
12.5K
Sometimes we want to see how people change over time, as in studies of human development and lifespan. When we test the same group of individuals repeatedly over an extended period of time, we are conducting longitudinal research. Longitudinal research is a research design in which data-gathering is administered repeatedly over an extended period of time. For example, we may survey a group of individuals about their dietary habits at age 20, retest them a decade later at age 30, and then again...
12.5K
Cancer Vaccines
514
Cancer treatment vaccines are a rapidly evolving field that offers a promising approach to immunotherapy. Unlike traditional vaccines that prevent diseases, cancer treatment vaccines are designed to treat existing cancers by stimulating the immune system to recognize and attack cancer cells.
Cancer vaccines come in two categories: preventive (prophylactic) and treatment (active). Preventive vaccines, such as the Human Papillomavirus (HPV) vaccine, protect against viruses that cause certain...
Cancer vaccines come in two categories: preventive (prophylactic) and treatment (active). Preventive vaccines, such as the Human Papillomavirus (HPV) vaccine, protect against viruses that cause certain...
514
