欧洲以患者为中心的护理的实用方法:混合方法研究 开发全面癌症护理网络的概念框架
Emily Hickmann1, Peggy Richter1, Hannes Schlieter1
1Technische Universität Dresden, Faculty of Business and Economics, Research Group Digital Health, Dresden, Germany.
JMIR cancer
|July 31, 2025
概括
这项研究定义了综合性癌症护理网络 (CCCN) 中的患者中心性,强调了患者赋权和个性化护理. 开发的框架指导CCCN优先考虑患者需求以改善癌症治疗结果.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 在瘤学瘤学.
- 以患者为中心的护理
背景情况:
- 以患者为中心的护理是从传统的以医生为中心的医疗保健模式的范式转变.
- 由于癌症的复杂性和情绪影响,癌症护理需要以患者为中心的方法.
- 综合性癌症护理网络 (CCCN) 提供了一个结构化的模型,用于提供个性化的癌症护理.
研究的目的:
- 建立一个一致的定义和框架,在CCCN中以患者为中心.
- 促进以患者为中心的方法的整合,以提高癌症护理的质量.
- 开发可行的策略,在CCCN中实施以患者为中心的护理.
主要方法:
- 进行了对患者中心性的通用和瘤学特异维度的综合性审查.
- 诱导类别的发展被用于数据分析和合成.
- 对23个CCCN利益相关者进行的调查和一个与患者代表组成的焦点小组,就该框架达成共识.
主要成果:
- 在CCCN中建立了以96%的同意为中心的患者中心的定义和框架.
- 在CCCN中,以患者为中心优先考虑身体,情感,社会需求和价值观.
- 该框架包括8个维度:患者赋权,参与,个性,治疗关系,文化,整体护理,专业支持和护理协调.
结论:
- 该研究提供了对欧洲CCCN中以患者为中心的护理的全面了解.
- 这些发现加强了在癌症护理和其他医疗保健机构中以患者为中心的应用.
- 结果支持CCCN在创建患者感到被倾听,被重视和参与决策的环境中.
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