量化和解决癌症患者自我定义的需求.
J Isabelle Choi1,2, Charles B Simone3,4, Minesh P Mehta5
1Department of Radiation Oncology, Memorial Sloan Kettering Cancer Center, 1275 York Ave, New York, NY, USA. choij3@mskcc.org.
概括
癌症患者面临着严重的财务毒性,经常失去储蓄和房屋. 一个新的患者门户网站量化了他们的各种需求,使得定制的支持和资源分配能够获得更好的结果.
科学领域:
- 在瘤学瘤学.
- 医疗保健服务研究 医疗服务研究
- 卫生经济学 卫生经济学
背景情况:
- 癌症治疗带来了巨大的财务负担,导致两年内几乎一半的患者的储蓄耗尽,破产和住房损失.
- 金融毒性是瘤学的关键问题,需要创新的解决方案来支持患者.
- 了解患者的具体需求对于有效的财政和非财政援助至关重要.
研究的目的:
- 量化不同癌症患者队列的财务和非财务需求.
- 检查与独特需求相关的患者特定因素.
- 评估一个新的以患者为导向的需求评估门户.
主要方法:
- 对223名在"我们一起在这里" (WiTT) 支持注册表TM.注册的瘤患者的回顾性评估.
- 在2023年1月至2023年12月期间,从两个三级护理癌症中心收集的数据.
- 分析日常生活,住房,健康和交通领域的援助请求,包括健康社会决定因素 (SDoH) 数据.
主要成果:
- 大多数患者 (54%西班牙裔,65%女性,49%年龄在41-60) 使用了该门户.
- 在12个月内,有2,411个援助请求,平均为每名患者10.8个.
- 金融需求占95%的请求,其中住房 (33%) 和日常生活 (31%) 是最突出的领域. 总的财务要求超过了130万美元,平均为每名患者5921美元.
结论:
- 一个由患者驱动的门户网站可以根据自我报告的需求来促进定制的资源分配.
- 需要进一步的研究来预测基于患者特征的需求.
- 开发有针对性的解决方案对于解决目前患者支持方面的差距至关重要.
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