当一个亲人的死亡 (安乐死) 临近时,在生活中进行导航:来自荷兰的叙事采访研究
Bernadette Roest1, Megan Milota2, Carlo Leget1
1University of Humanistic Studies, Utrecht, The Netherlands.
PloS one
|August 1, 2025
概括
家庭参与终身护理,包括安乐死,是一种深刻的社会关系体验. 医疗专业人员参与了这个非常个人化的旅程,强调了对患者和家人的全面支持的需要.
科学领域:
- 终身护理研究 终身护理研究
- 医学社会学 医学社会学
- 家庭研究 家庭研究
背景情况:
- 探讨家庭参与荷兰安乐死做法.
- 临终决策和全科医生 (GP) 引导的家庭护理的背景.
研究的目的:
- 了解亲属参与生命末期护理,包括安乐死.
- 将家庭参与从医疗事务转变为社会关系体验.
主要方法:
- 质量深入面试研究. 质量深入面试研究.
- 18名患有无法治愈的转移性癌症患者的亲属 (9名前性,9名后性).
- 通过护理伦理的洞察力和叙事方法来告知.
主要成果:
- 亲属在一个亲人的死亡过程中,在多个生命维度 (空间,决定,照顾,情感,关系) 中进行导航.
- 患者和亲属主要是互相陪伴;GP的作用是有价值的,但脆弱的.
- 更广泛的社交网络和其他专业人员对于支持至关重要.
结论:
- 家庭参与终身护理,包括安乐死,从根本上说是社会和关系,而不仅仅是医疗.
- 医疗专业人员参与了家庭对死亡和死亡的深刻体验.
- 视角的转变需要更加关注对患者和亲属的支持,无论死亡方式如何.
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