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开发和评估一个捆绑数字工具,以改善炎症性肠病患者的复杂护理和自我管理:混合有效性实施研究协议
Kaitlyn Delaney Chappell1, Melissa Fox1, Thomas Scott Armstrong1
1Division of Gastroenterology, Department of Medicine, University of Alberta, 130 University Campus NW, Edmonton, AB, T6G2X8, Canada, 1 7804928691 ext 6.
本研究介绍了MyIBDToolkit,这是一款旨在改善阿尔伯塔省炎性肠病 (IBD) 自主管理和护理质量的数字工具. 该工具包旨在赋予患者权力,减少疾病负担,提高医疗保健系统的效率.
科学领域:
- 数字健康干预措施 数字健康干预措施
- 患者的自我管理.
- 炎症性肠道疾病 (IBD) 护理
背景情况:
- 炎症性肠病 (IBD) 带来了重大的身体和心理社会挑战.
- 获得有限的医疗保健导致IBD治疗延迟,患者的治疗结果低于最佳.
- 患有IBD的患者通常需要在医疗预约之间自我管理他们的病情方面.
研究的目的:
- 设计,实施和评估MyIBDToolkit,这是一个用于IBD护理的数字健康工具.
- 提高加拿大阿尔伯塔省IBD患者的护理质量和自我管理.
- 通过患者赋权和参与来解决IBD护理的差距.
主要方法:
- 一种类型2的混合有效性-实施设计将评估临床影响和现实世界的整合.
- 我的IBD工具包将被集成到省级电子健康记录系统中.
- 通过使用行政数据评估医疗保健利用率,患者疾病负担和系统负担的有效性.
- 实施成功通过覆盖范围,忠实性,持续使用和采用因素来评估.
主要成果:
- 资金在2023年1月获得,正在进行利益相关者参与和准备评估.
- 混合方法从患者收集数据,以确定工具包使用的障碍和促进者.
- MyIBD工具包的第一阶段于2024年10月推出.
结论:
- 我的IBD工具包提供了一个可扩展的,以患者为中心的IBD自我管理方法.
- 赋予患者权力旨在减少IBD对患者,提供者和医疗保健系统的负担.
- 评估有效性和实施将推动阿尔伯塔省IBD护理的可持续改进.
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