在NMOSD中关于计划生育和怀孕的知识,关切和经验:来自阿根廷的横截面研究
Edgar Carnero Contentti1, Ricardo Alonso2, Verónica Tkachuk3
1Neuroimmunology Unit, Department of Neurosciences, Hospital Aleman, Buenos Aires, Argentina; Center for Neuroimmunological Diseases in Rosario (CENRos), Neuroimmunology Clinic, Instituto de Neurología Cognitiva (INECO) Neurociencias Oroño, Rosario, Argentina.
Multiple sclerosis and related disorders
|August 1, 2025
概括
对于患有神经omyelitis optica光谱障碍 (NMOSD) 的患者来说,缺乏计划生育讨论. 许多患者希望怀孕,但缺乏临床指导会影响母亲和胎儿的结果.
科学领域:
- 神经学 神经学
- 生殖健康 生殖健康
背景情况:
- 神经omyelitis optica光谱障碍 (NMOSD) 是一种罕见的自身免疫性疾病,影响中枢神经系统.
- 在NMOSD患者中计划生育 (FP) 和怀孕由于疾病活动和治疗考虑而存在独特的挑战.
研究的目的:
- 调查诊断为NMOSD的患者的计划生育经验和知识.
- 了解怀孕欲望,意外怀孕和医疗保健提供者关于这一群体生殖的沟通的流行情况.
主要方法:
- 通过基于网络的调查进行了一项横截面研究.
- 该调查收集了有关计划生育实践,妊娠史 (NMOSD前后诊断) 和对怀孕的看法的数据.
主要成果:
- 超过一半的105名参与者 (55.2%) 从未与神经科医生讨论过怀孕问题.
- 30.8%的患者在诊断后想要怀孕,但只有7.6%的患者相应调整治疗.
- 意外怀孕是常见的,11.4%的受试者接受了反对怀孕的建议,有显著的复发 (33.3%) 和流产率.
结论:
- 在NMOSD患者的临床管理中,计划生育问题没有得到充分的解决.
- 改善沟通和主动咨询对于优化NMOSD妇女的孕产妇和胎儿结果至关重要.
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