解决儿童癌症治疗拒绝问题的方法超出法律诉讼范围
Amy E Caruso Brown1,2, Laura M Beskow3, Daniel J Benedetti3,4
1Center for Bioethics and Humanities, SUNY Upstate Medical University, Syracuse, New York, USA.
Pediatric blood & cancer
|August 2, 2025
概括
儿科瘤学家使用沟通,建立信任和谈判来管理治疗拒绝病例. 需要改善机构支持和资源来应对这些复杂的伦理和临床挑战.
科学领域:
- 儿科瘤学 儿科瘤学
- 医学伦理 医学伦理
- 临床心理学 临床心理学
背景情况:
- 家长拒绝儿童癌症治疗对患者构成重大风险.
- 这种拒绝会给医疗保健提供者带来道德和情感上的痛苦.
- 了解瘤学家的策略对于改善患者护理和临床医生支持至关重要.
研究的目的:
- 描述儿科瘤学家在面对治疗拒绝或放弃时使用的各种方法.
- 探索在法律干预考虑之前,期间和之后使用的策略.
- 确定影响这些决策的因素和所使用的资源.
主要方法:
- 对美国儿科瘤学家进行了定性采访.
- 有目的和推抽样确保了参与者之间的多样性.
- 采访被转录和分析使用应用主题分析在一个有基础的理论框架内.
主要成果:
- 瘤学家采用了以沟通物流,建立信任和谈判/妥协为中心的战术.
- 参与者描述了经历如何改变了他们的实践,并向同事提供了建议.
- 大多数人缺乏伦理咨询以外的机构政策,并希望有更好的准备.
结论:
- 这些发现支持开发更强大的资源来管理拒绝治疗.
- 建议包括教育,共识指南与基于证据的治疗修改,以及改善心理健康护理的准入.
- 应对这些挑战需要系统支持和定制干预措施.
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