基于互联网的响应式育儿计划的可用性测试,用于生活在农村和阿巴拉契山脉社区的儿童癌症年轻幸存者的护理人员:混合方法研究研究
Emily L Moscato1,2, Eva Darow1, Jessica Quach1
1The Center for Biobehavioral Health, The Research Institute, Nationwide Children's Hospital, 431 S 18th St, Columbus, OH, 43205, United States, 614-722-4724.
JMIR pediatrics and parenting
|August 5, 2025
概括
幼儿癌症幸存者的护理人员发现,为年轻幸存者准备生活和学术 (PLAY) 数字程序易于使用. 这个平台提供了一种有希望的方式来支持面临发展和教育差异的家庭.
科学领域:
- 儿科瘤学 儿科瘤学
- 发展心理学 发展心理学
- 医疗信息学 医疗信息学
背景情况:
- 年轻的儿童癌症幸存者面临着重大的发展挑战.
- 护理人员在导航医疗保健和教育系统时经历压力.
- 对于这些家庭来说,没有专门的早期干预措施,尤其是在服务不足的地区.
研究的目的:
- 描述"为年轻幸存者准备生活和学术 (PLAY) "计划的可用性.
- 评估一个基于互联网的响应式育儿计划,用于年轻癌症幸存者的照顾者.
主要方法:
- 混合方法可用性测试与12个年轻癌症幸存者的护理人员.
- 在线会议使用大声思考,系统可用性量表 (SUS),反应卡和采访.
- 使用快速分析和共识方法分析的定性数据.
主要成果:
- 92%的护理人员认为PLAY平台易于使用 (平均SUS为82.2).
- 护理人员将该平台描述为有用,有吸引力和有价值.
- 建议的改进包括封闭字幕,定制内容和移动优化.
结论:
- 像PLAY这样的数字平台显示出它有望弥合对高需要人群的护理机会.
- 进一步开发可以提高年轻癌症幸存者的神经发育结果.
- PLAY计划可以为处于危险的家庭提供关键的预期指导和资源.
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