间歇性囊炎/膀疼痛综合征的诊断和治疗的变化:互联网调查
Eleanora Melkonian1, A Leigh Garrett2, Erika Kline2
1APV-DTW LP, Bonita Springs, FL, United States.
JMIR formative research
|August 5, 2025
概括
患有间歇性囊炎/膀疼痛综合征 (IC/BPS) 的种族和民族少数群体不太可能接受正式诊断,这影响了他们获得必要治疗的机会. 改善诊断和意识对于管理IC/BPS症状至关重要.
科学领域:
- 泌尿器科 泌尿器科 泌尿器科 泌尿器科
- 公共卫生 公共卫生
- 健康差异 在健康上的差异
背景情况:
- 间歇性囊炎/膀疼痛综合征 (IC/BPS) 是一种导致膀疼痛和尿路症状的慢性疾病.
- IC/BPS显著影响患者的生活质量,情绪健康和日常活动.
研究的目的:
- 将不同种族和族群的经验与IC/BPS进行比较.
- 研究不同人群在症状表现,诊断和治疗方面的差异.
主要方法:
- 一项基于网络的横截面调查对1631名报告IC/BPS症状的成年人进行了调查.
- 收集的数据包括人口统计,症状严重程度 (O'Leary-Sant ICSI/ICPI),诊断状态和治疗使用情况.
- 使用比较分析和多变量后勤回归来评估种族/民族差异.
主要成果:
- 虽然症状严重程度并没有因种族/种族而异,但少数群体的受访者接受正式IC/BPS诊断的可能性降低了50%.
- 正式诊断是接受治疗的最强预测因素 (OR 29.67).
- 超过25%的参与者使用麻醉剂或阿片类药物来治疗症状.
结论:
- 少数民族个人面临着IC/BPS诊断的重大障碍,可能会限制获得护理的机会.
- 建议简化诊断,提高公众对IC/BPS及其治疗方法的认识.
- 解决诊断延迟可以改善所有IC/BPS患者的症状管理和生活质量.
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