父母在儿科息护理中的未满足需求:质量系统审查
Piyumi Senanayake1, John Oldroyd1
1School of Behavioural and Health Sciences, Australian Catholic University, Fitzroy, Victoria, Australia.
Journal of palliative medicine
|August 6, 2025
概括
患有严重疾病的儿童的父母在儿科息护理方面有未满足的需求. 本次审查强调了服务提供,支持和沟通方面的差距,呼吁改善医疗保健政策,以满足既定标准.
科学领域:
- 儿科缓和护理 儿科缓和护理
- 定性研究是指质量研究.
- 医疗保健政策 医疗保健政策
背景情况:
- 儿科息护理旨在提高有生命限制条件的儿童及其家属的生活质量.
- 现有的服务往往无法满足父母的需求,证据不一致.
- 需要对父母在这个领域未得到满足的需求进行批判性评估.
研究的目的:
- 系统地综合和批判性地评估有关接受儿科息护理的父母未满足需求的证据.
- 在当前的儿科息护理框架内,确定家长支持缺乏的特定领域.
主要方法:
- 进行了定性系统审查,遵守系统审查和元分析 (PRISMA) 2020年优先报告项目指南.
- 在五个主要的电子数据库中进行了搜索:MEDLINE,Scopus,科学网,CINAHL和PsychINFO.
- 包括的研究经过评估,使用关键评估技能计划 (CASP) 检查清单和通过框架分析进行分析.
主要成果:
- 综述中包括了13项研究.
- 出现在未满足的家长需求的五个关键主题:服务提供/协调,情感/心理/精神支持,生命末期/丧亲关怀,实际/日常生活援助以及沟通/信息.
- 父母表示希望在管理孩子的照顾方面得到更多的支持.
结论:
- 在儿科息护理中发现的未满足需求与现有的标准保持一致.
- 显然需要修订医疗保健政策和实践,以确保更好地执行已建立的儿科息护理标准.
- 改善服务提供和支持对于有效解决家长需求至关重要.
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