"PASIBO"的研究设计 - - 对患有炎症性肠病的患者共同创建和开发体育活动干预措施
Tanja Thomsen1,2,3, Marie Villumsen4,5, Anja Poulsen6,7
1Center for Clinical Research and Prevention, Copenhagen University Hospital - Bispebjerg and Frederiksberg, Copenhagen, Denmark. tanja.thomsen@regionh.dk.
BMC health services research
|August 7, 2025
概括
这项研究为炎症性肠病 (IBD) 患者开发了一项联合创建的体育活动干预措施,通过量身定制的计划来解决他们改善健康和生活质量的独特需求.
科学领域:
- 卫生科学 卫生科学 卫生科学
- 康复医学 康复医学 康复医学
- 公共卫生 公共卫生
背景情况:
- 患有炎症性肠病 (IBD) 的患者表现出低水平的体力活动,对健康结果和生活质量产生负面影响.
- 现有的体育活动干预措施缺乏针对IBD人口的特定需求和偏好.
- 本研究详细介绍了为IBD患者共同创建的体育活动干预措施的系统开发.
研究的目的:
- 系统地为患有炎症性肠病 (IBD) 的患者开发联合创建的体育活动干预措施.
- 确保干预是根据IBD患者的具体需求和偏好而定制的.
- 创建一个环境相关的和潜在的可持续的体育活动计划.
主要方法:
- 采用医学研究理事会 (MRC) 框架进行复杂的干预,包括共同创造和参与式系统导向方法.
- 进行了三阶段的开发过程:准备 (文献审查,利益相关者咨询,系统映射),共同创作研讨会和与反的干预原型设计.
- 利用利益相关者的意见和多学科卫生专业人士的反来完善干预内容和交付.
主要成果:
- 确定了五个主要重点领域:个性化,社区培养,心理健康,可持续性和IBD/体育活动知识增强.
- 开发了一种多元干预方案,包括小组教育课程,护士主导的激励咨询和可选的物理治疗,运动视频和同行支持.
- 通过从健康专业人员和专门从事体育活动和IBD的研究人员的反来改进干预内容和实用性.
结论:
- 为IBD患者成功开发了一种综合个人和社会因素的多元体育活动干预措施.
- 联合创作方法,结合基于证据的策略与利益相关方的参与,产生了具有上下文相关性和潜在的可持续性干预.
- 一项可行性研究正在进行中,以评估干预措施的可接受性并确定必要的调整.
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