自闭症谱系障碍:哈萨克斯坦父母的经验
Aziza Imamatdinova1,2, Aizhan Samambayeva2, Nazgul Akhtaeva1,2
1Asfendiyarov Kazakh National Medical University, Almaty, Kazakhstan.
BMC public health
|August 7, 2025
概括
在哈萨克斯坦,患有自闭症谱系障碍 (ASD) 的孩子的父母面临着重大的财务和就业挑战. 改善国家支持和获得专家的机会对于全面护理和减少家庭负担至关重要.
科学领域:
- 神经发育障碍 神经发育障碍
- 儿科卫生服务 儿科卫生服务
- 健康的社会决定因素
背景情况:
- 自闭症谱系障碍 (ASD) 是一种神经发育障碍,其全球流行率越来越高.
- 早期识别和全面支持对于患有自闭症儿童至关重要.
- 哈萨克斯坦在为患有自闭症儿童提供足够的护理方面面临着挑战.
研究的目的:
- 检查哈萨克斯坦照顾自闭症儿童的家长当前的经验.
- 识别对ASD儿童的照顾提供系统性差距.
- 为未来改善哈萨克斯坦的护理系统提供信息.
主要方法:
- 一项涉及哈萨克斯坦390名自闭症儿童家长的横截面研究.
- 开发一个父母和专家通知的问卷,以评估护理缺口.
- 使用奇平方测试来评估结果的统计分析.
主要成果:
- 城市父母报告的收入和教育水平高于农村的父母.
- 许多家庭面临着经济不稳定,单亲家庭和失业是重大问题.
- 超过73%的家长报告说,国家对教育和治疗的财政支持不足,这凸显了需要法律援助的需要.
结论:
- 该研究揭示了哈萨克斯坦自闭症儿童家庭面临的重大挑战.
- 财政负担,对专家的访问有限,以及支持系统不足,阻碍了护理.
- 需要进行系统性改进,以加强对自闭症儿童及其家属的照顾和支持.
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