患者贡献的数据和药物安全:关于癌症患者自我报告行为的研究
Xinyue Mao1, Serena Chen1, Xiayuan Huang2
1University of Michigan, School of Nursing, Ann Arbor, MI.
Studies in health technology and informatics
|August 8, 2025
概括
癌症患者更有可能在家中报告药物安全问题,当事件扰乱日常生活或似乎严重时. 改善系统可用性和临床医生沟通可以提高患者报告和药物安全性.
科学领域:
- 在瘤学瘤学.
- 患者安全 患者安全
- 健康 结果 研究 研究 结果
背景情况:
- 癌症患者在家中的药物安全事件对健康结果产生重大影响.
- 患者在向医疗保健提供者报告这些安全事件时遇到障碍.
- 有效的报告对于改善癌症护理和患者安全至关重要.
研究的目的:
- 确定影响癌症患者药物安全事件自我报告行为的关键因素.
- 了解患者对报告障碍和促进因素的观点.
- 为以患者为中心的药物安全报告系统的设计提供信息.
主要方法:
- 采用混合方法方法,将调查和采访数据结合起来.
- 从41名癌症患者 (乳腺癌,肺癌,前列腺癌,结直肠癌) 收集了数据.
- 使用后勤回归和主题分析来分析数据.
主要成果:
- 关于药物的信念和感知到的系统可用性预测了报告行为 (AUC=0.85).
- 对日常生活的干扰和事件的严重程度是报告的关键触发因素.
- 系统可用性和临床医生关系影响了患者报告的意愿.
结论:
- 用户友好的报告系统和支持性沟通对于提高患者对药物安全的参与至关重要.
- 解决患者报告的障碍可以改善收集有价值的安全数据.
- 研究结果为设计以患者为中心的系统提供了见解,以促进报告和改善癌症护理.
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