基于xShare的个人数字双胞胎:隐私的终结还是精确健康的关键?
Catherine Chronaki1, Evangelos Markatos2
1HL7 Europe, Brussels Belgium.
Studies in health technology and informatics
|August 8, 2025
概括
个人健康双胞胎,由欧洲健康数据空间启用.
科学领域:
- 数字健康数字健康
- 医疗信息学 医疗信息学
- 个性化医疗是个性化的医疗.
背景情况:
- 实时健康数据和可访问的计算推动了数字双胞胎的增长.
- 欧洲健康数据空间 (EHDS) 正在探索创新的数据共享解决方案.
研究的目的:
- 引入个人健康双胞胎作为EHDS框架内的新应用程序.
- 探索个人健康双胞胎的用例,挑战和机会.
- 讨论伦理和隐私方面的影响与个性化医学的好处.
主要方法:
- 个人健康双胞胎的概念化.
- 分析xShare"黄色"按作为数据共享启用器.
- 审查潜在的使用案例和相关的伦理考虑.
主要成果:
- 个人健康双胞胎为个性化精密医学提供了新的可能性.
- 在xShare"黄色"按方便个人控制健康数据共享.
- 伦理和隐私问题需要与技术进步一起仔细考虑.
结论:
- 通过像EHDS这样的倡议支持的个人健康双胞胎,代表了健康数据利用的重大进步.
- 将数据隐私与实时,个性化医疗保健的潜力相平衡,对于成功实施数字健康双胞胎至关重要.
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