推进健康信息安全和研究:将波多黎各的电子健康数据集成到联合的真实世界数据网络中
1University of Puerto Rico.
Studies in health technology and informatics
|August 8, 2025
概括
波多黎各缺乏研究的集中临床数据资源. 建立安全的电子健康记录 (EHR) 数据共享可以将公关定位为医学研究和合作的全球领导者.
科学领域:
- 医疗信息学 医疗信息学
- 临床数据管理 临床数据管理
- 生物医学研究基础设施
背景情况:
- 越来越需要安全的机构临床数据库用于研究.
- 内部和机构间患者数据共享对科学进步的重要性.
- 现有的全球努力将临床数据库相互连接起来.
研究的目的:
- 确定波多黎各 (PR) 中央化临床数据资源的差距.
- 评估与全球研究社区共享临床信息的能力.
- 提出利用电子健康记录 (EHR) 数据在公关领域的研究的战略.
主要方法:
- 分析当前的数据共享倡议和基础设施.
- 评估现有的电子健康记录 (EHR) 系统.
- 评估数据整合的障碍和机会.
主要成果:
- 在PR的集中临床数据资源中发现了重大缺口.
- 与国际研究人员共享患者数据的能力有限.
- 公共关系的未开发潜力可以导致电子健康记录数据用于研究.
结论:
- 在PR中建立一个集中的临床数据资源至关重要.
- 开发安全的EHR数据共享机制可以加强研究.
- 通过数据集成,公关可以成为全球健康研究的领导者.
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