[作为数据来源的瑞典国家患者登记册的最新审查]
1professor, överläkare, Sachsska barn- och ungdomssjukhuset, Stockholm; Karolinska institutet, Stockholm.
概括
瑞典国家患者登记册 (NPR) 为流行病学研究提供可靠的数据,对手术代码具有高准确性,对诊断具有良好的预测值. 研究人员应该考虑它的局限性,以实现最佳使用.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 流行病学 流行病学
- 医疗信息学 医疗信息学
背景情况:
- 瑞典国家患者登记册 (NPR) 是流行病学研究的重要资源.
- 以前的评估主要集中在住院诊断上,不包括门诊数据.
- 一次更新的审查是必要的,以全面评估注册表的有效性.
研究的目的:
- 系统地审查和综合瑞典国家患者登记 (NPR) 的验证研究.
- 评估NPR中住院和门诊数据的准确性.
- 确定影响注册表数据质量研究的因素.
主要方法:
- 进行了对89篇审查NPR数据验证的出版物的系统审查.
- 分析了2010年以后发布的住院患者数据和2001年以后的门诊患者数据的研究.
- 评估的指标,如正预测值 (PPV) 和灵敏度.
主要成果:
- 诊断的PPV中位数为84% (范围:18-100%) 和手术代码的97%.
- 诊断的中位敏感度为73% (范围:45-80%).
- 根据诊断,编码实践,参考标准和数据源,准确性有很大差异.
结论:
- 国家人口普查是医学研究的宝贵数据来源,特别是手术代码.
- 研究人员必须承认并考虑诸如不完整的早期门诊数据和报告差距等局限性.
- 将NPR数据与其他注册表结合起来,可以提高研究的准确性和有效性.
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