患有慢性疾病的年轻成年人的同行支持需求和经验:一种混合方法研究
Katherine Melton1, Brynn Telenko1, Peyton Miles2
1Boston Children's Hospital, USA.
Health care transitions
|August 8, 2025
概括
患有慢性疾病的年轻人渴望同龄人的支持,报告孤独和社会隔离. 虚拟同行支持计划是可以接受的,可能会改善这一群体的心理社会福祉.
科学领域:
- 健康科学 卫生科学 卫生科学
- 心理学 心理学 心理学
- 社会学 社会学 社会学
背景情况:
- 患有慢性疾病的年轻人面临着独特的心理社会挑战,包括社会隔离.
- 同行支持被认为是一个有价值的资源,但它对这一人口群体的可用性和可访问性仍未得到充分研究.
- 虚拟平台为连接患有慢性疾病的年轻人提供了潜在的解决方案.
研究的目的:
- 描述患有各种慢性疾病的年轻成年人的心理社会和同行支持需求.
- 评估虚拟社区领导的同行支持计划的接受度和满意度.
主要方法:
- 一项64项在线调查试点测试了136名被诊断患有慢性疾病的年轻成年人 (18-35岁).
- 该调查包括人口统计,疾病特征,同行支持经验,孤独感 (UCLA 3项尺度) 和计划满意度的措施.
- 采用了融合的并行混合方法,整合了调查答复中的定量和定性数据.
主要成果:
- 绝大多数参与者 (72%) 报告说他们感到孤独,而91%的人表示需要与有类似健康状况的同龄人联系.
- 大多数参与者 (94%) 对虚拟同行支持计划感到满意,强调其可接受性.
- 很少有参与者 (11%) 报告获得医院提供的同行支持,这表明当前服务存在差距.
结论:
- 同龄人支持是患有慢性疾病的年轻成年人中未得到满足的需求,无论他们的具体诊断如何.
- 虚拟同行支持计划的接受度和满意度很高,这表明它们可以有效地解决心理社会需求.
- 扩大虚拟同行支持计划可以显著提高管理慢性疾病的年轻成年人的福祉.
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