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在肯尼亚,儿童癌症幸存者的自我报告后期影响
Jesse Lemmen1,2, Susan Mageto3,4, Festus Njuguna5
1Pediatric Oncology, Emma Children's Hospital, Amsterdam UMC, Vrije Universiteit Amsterdam, Amsterdam, the Netherlands.
African health sciences
|August 8, 2025
概括
肯尼亚儿童癌症幸存者经常经历疼痛和疲劳等晚期影响,影响日常生活. 建议这些幸存者在转诊中心改善教育和后续护理.
科学领域:
- 儿科瘤学 儿科瘤学
- 全球健康 全球健康
- 癌症的生存率 癌症的生存率
背景情况:
- 在低收入和中等收入国家,儿童癌症幸存者的数量正在增加.
- 肯尼亚缺乏关于儿童癌症幸存者的晚期影响和随访护理偏好的数据.
研究的目的:
- 评估肯尼亚儿童癌症幸存者的自我报告的晚期影响.
- 探索肯尼亚儿童癌症幸存者对幸存者护理的偏好.
主要方法:
- 半结构面试与26名儿童癌症幸存者在肯尼亚 (2021-2022) 进行.
- 从医疗记录中审查了患者和治疗特征.
- 幸存者至少在一年前完成了治疗,从完成治疗后的中位数为七年.
主要成果:
- 73%的幸存者报告了晚期影响,主要是疼痛和疲劳.
- 42%的人在日常活动 (体力工作,个人护理,社会参与) 中经历了限制.
- 只有31%的人回忆起曾经被告知过晚期影响的情况,58%的人以前没有被跟进.
结论:
- 肯尼亚儿童癌症幸存者报告的晚期影响与全球同行类似.
- 幸存者和医疗保健提供者需要对癌症终身影响的教育.
- 幸存者更喜欢在转诊中心进行后续护理,并推教育计划和幸存者会议.
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