社区参与长期COVID研究:从长期COVID和插曲性残疾研究的过程,评估和建议
Margaret E O'Hara1, Kiera McDuff2, Hannah Wei3
1Long Covid Support, London, UK.
概括
这项研究详细介绍了长期Covid研究的社区参与方法,提高了研究的相关性和质量. 为长期Covid和类似疾病的未来面向患者的研究提供了建议.
科学领域:
- 以患者为导向的研究
- 社区参与健康研究
- 与感染相关的慢性疾病.
背景情况:
- 在长期Covid研究中,患者参与至关重要,但各个团队的实施情况各不相同.
- 本文描述和评估了长期COVID和情节性残疾研究中的社区参与方法.
- 它为未来社区参与的以患者为导向的研究提供了建议.
研究的目的:
- 描述一个社区参与的长期Covid研究研究的过程.
- 评估社区参与方法的优点和局限性.
- 为患者参与长期Covid研究提供建议.
主要方法:
- 利用4PI框架和患者领导的研究成绩单进行社区参与的研究.
- 通过多阶段咨询评估参与,包括在线讨论和基于网络的问卷.
- 评估了跨领域的合作:患者负担,治理,整合和组织准备.
主要成果:
- 10名团队成员,包括5名有实践经验的团队成员,完成了成绩单,平均得分从+1到+2.
- 代表四个社区组织的五位有实践经验的个人参加了讨论.
- 确定了能够实现有意义参与的实践和原则,以及优势和局限性.
结论:
- 社区参与的方法提高了长期COVID和插曲性残疾研究的质量和相关性.
- 这项研究加强了以社区为基础,以患者为导向的研究的基本原则.
- 从中得出的建议可以指导其他研究小组进行类似的研究.
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