了解患者在手部骨关节炎中关节保护的需求和偏好,通过混合方法患者共同设计
Dimitra V Pouliopoulou1,2,3, Joy C MacDermid4,5,6, Nicole Billias4,6
1School of Physical Therapy, Health and Rehabilitation Sciences, Western University, London, ON, Canada. dpouliop@uwo.ca.
Scientific reports
|August 11, 2025
概括
患者共同设计创建了一个新的,可访问的,技术支持的关节保护计划 (JPP) 用于手骨关节炎 (HOA). 这种包容性的方法解决了关键的日常活动和挑战,改善了患者的治疗结果.
科学领域:
- 类风湿病学 类风湿病学
- 职业疗法 职业疗法 职业疗法
- 人与计算机的交互
背景情况:
- 手部骨关节炎 (HOA) 显著影响日常功能和生活质量.
- 目前的联合保护计划 (JPPs) 往往过时,难以获得,并非以患者为中心.
研究的目的:
- 共同设计一个新的,包容性和技术支持的JPP,用于HOA的个人.
- 从患者的角度确定JPP的优先活动,挑战和偏好.
主要方法:
- 一个解释性的顺序设计,结合了定量调查 (n=196) 和定性访谈 (n=20).
- 计算日常活动的相对重要性指数 (RII);半结构面试探讨了生活经验和JPP偏好.
主要成果:
- 确定的重要任务包括扣扣,抓握和扭动 (RII > 0.8).
- 功能障碍包括精确的抓地力,粗运动任务和疼痛干扰.
- 关键主题包括维持活动,患者支持和可访问性障碍 (技术,护理).
结论:
- 共同设计对于开发HOA相关和可访问的JPP至关重要.
- 未来的JPP应该整合患者支持社区,并解决交叉障碍.
- 技术支持的,包容性的JPP可以增强HOA患者的坚持和改善HOA患者的结果.
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