智力和发育障碍 医疗保健转型:利益相关者的观点
Christine Bottrell Mirzaian1, Alexis Deavenport-Saman1, Sharon Hudson1
1Christine Bottrell Mirzaian and Alexis Deavenport-Saman, University of Southern California Keck School of Medicine; and Sharon Hudson, AltaMed Institute for Health Equity; and Cecily L. Betz, University of Southern California Keck School of Medicine.
Intellectual and developmental disabilities
|August 13, 2025
概括
智力/发育障碍 (IDD) 的年轻人面临着独特的医疗保健过渡挑战. 感知突出需要减少耻辱感,改善教育机会,并加强对那些同时出现精神健康状况的人的支持服务.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 发育障碍 发育障碍是一种发展障碍.
- 心理健康服务 心理健康服务
背景情况:
- 智力和发育障碍 (IDD) 的青年和年轻人 (YYA) 在医疗保健过渡期间遇到不同的挑战.
- 与其他长期疾病相比,患有IDD和同时出现的精神健康 (MH) 疾病的YYA面临着复杂的困难.
研究的目的:
- 探索在医疗保健过渡期间对具有IDD的YYA和具有IDD和并发性MH条件的YYA的需求感知.
- 从社区组织,倡导者和提供者的角度确定障碍物和所需的支持.
主要方法:
- 对277名受访者进行调查,包括社区组织,倡导者和提供者.
- 对年轻人在医疗保健转型期间所面临的需求和障碍的看法分析.
主要成果:
- 社区组织认为污名化/偏见是IDD的YYA的重大障碍.
- 倡导者强调,需要为具有IDD和并发性MH条件的YYA提供中学后培训/教育机会.
- 需要为YYA提供更大的支持,同时出现MH条件,特别是在就业,住房,交通和财务安全方面.
结论:
- 在医疗保健转型期间,解决耻辱和改善教育机会对于IDD的YYA至关重要.
- 包括就业,住房和财务支持在内的综合服务对于YYA具有IDD和并发性MH条件至关重要.
- 利益相关者的观点揭示了特定的需求,需要有针对性的干预措施,以促进成功的医疗保健转型.
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