利益相关者对MyPal项目的电子患者报告结果应用程序的看法和需求:跨部门定性焦点小组研究
Dimitrios Kyrou1, Panos Bonotis1, Christine Kakalou1
1Institute of Applied Biosciences, Centre for Research and Technology-Hellas, Thessaloniki, Greece.
JMIR cancer
|August 13, 2025
概括
像MyPal这样的电子患者报告结果 (ePRO) 工具可以通过改善沟通和监控来增强息性癌症护理. 解决隐私和可用性是成功整合到临床工作流程的关键.
科学领域:
- 在瘤学瘤学.
- 抚慰性护理是一种缓解性护理.
- 数字健康数字健康
背景情况:
- 息治疗对于患有癌症等危及生命的疾病的患者来说是必不可少的,解决身体,心理社会和精神需求.
- 血液性恶性瘤是一个重要的全球健康问题,影响成人和儿童.
- 电子患者报告结果 (ePRO) 干预措施,如MyPal项目,正在开发,以加强患者监测和在息护理中的决策.
研究的目的:
- 探索患者,护理人员和医疗保健专业人员 (HCP) 对MyPal数字解决方案低保真版本的看法.
- 确定有关数字工具在息性癌症护理中的可用性和整合性的需求和意见.
- 收集关于优化在息护理环境中的电子健康干预措施的见解.
主要方法:
- 这是一项定性,横截面的研究,涉及4个欧洲国家的12个试点前重点小组.
- 61名参与者包括成年癌症患者,有父母的儿科患者和瘤/息护理医疗人员.
- 以半结构化指南,简介和用户人物为指导的转录焦点小组讨论的主题分析.
主要成果:
- 参与者认识到通过加强症状监测,简化决策和加强医生与患者的沟通来改善护理的潜力.
- 人们对数据安全,隐私,通信协议以及医疗人员需要明确的响应机制表示担忧.
- 易用性,特别是对于弱势群体 (老年人,儿童) 和整合到临床工作流程中,包括医疗保健专家的警报系统,被强调为适用性的关键.
结论:
- 像MyPal这样的ePRO干预措施显示出通过加强沟通和监控来改善息护理的前景.
- 解决患者隐私问题,确保针对不同人群的用户友好设计,以及无的临床工作流集成对于采用至关重要.
- 研究结果将指导未来发展和优化癌症息治疗中的电子健康解决方案.
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